HISTORY OF WORLD SICKLE CELL DAY
World Sickle Cell Day – June 19
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In 2008, the United Nations General Assembly officially recognized sickle cell disease (SCD) as a global public health issue. Member States and international organizations were called upon to raise awareness about this life-threatening genetic blood disorder every year on June 19, now observed as World Sickle Cell Day.
How World Sickle Cell Day Began
The resolution (document A/63/L.63) was introduced by Ambassador Raymond Sege Bale of the Republic of the Congo. He emphasized the urgent need for global recognition of sickle cell anemia, a disease affecting over 100 million people worldwide, according to the World Health Organization (WHO).
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At the time, the disease was still widely misunderstood, primarily known only to the medical community or those directly affected. Ambassador Bale noted that despite its seriousness, sickle cell disease remained in a "medical ghetto" and lacked public attention. The resolution aimed to change that by shining a light on the global burden of sickle cell and encouraging bold public health action.
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The annual recognition on June 19 brings global visibility, advocacy, and hope to those living with sickle cell disease.
Why It Matters
Sickle cell disease is the most common inherited blood disorder in the world. If not diagnosed and treated early, it can lead to severe pain, organ damage, and premature death. Although millions are affected—including nearly 200,000 people in the United States—there is still no widely accessible cure.
World Sickle Cell Day serves as a global call to action—demanding improved treatment options, health equity, and increased investment in research and community support.
Participate in World Sickle Cell Day
Join advocates, patients, caregivers, and medical professionals around the world for events that educate, inspire, and mobilize communities. Whether you're hosting a local awareness event or participating virtually, your voice matters.
Register today for our World Sickle Cell Day virtual event: http://tinyurl.com/register2025wscd
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You can also view our important WSCD links by visiting:
For questions about the global 24-hour marathon or to submit an event flyer, contact:
Cayenne Wellness Center & Children’s Foundation (CWC) is honored to partner with the Global Alliance of Sickle Cell Disease Organizations (GASCDO) for the 6th Annual 24-Hour World Sickle Cell Day Zoom-A-Thon. Taking place from midnight to midnight on Thursday, June 19, this global virtual event brings together sickle cell communities from across the world in celebration and solidarity.
Join us for a full day of education, entertainment, and engagement, featuring voices from every corner of the sickle cell community. As we mark the 6th official observance of World Sickle Cell Day, we invite you to support our efforts by becoming a Hero or Champion-level sponsor and help elevate awareness, advocacy, and action for sickle cell disease worldwide.
